A Boy Named PHOENIX
Living with Pompe Disease
By Suzanne LeMehaute
Phoenix is a 7 year old boy living with a rare neuromuscular disorder called Pompe Disease. This is a story of strength, devotion and the importance of the human touch.
About the Author
Publish Date January 05, 2010
Dimensions Standard Portrait 64 pgs
Premium Paper, matte finish
Category Arts & Photography
Tags Pompe disease, human touch, Pompe, family, compassion
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